Task Force 2: special health care needs of adults with congenital heart disease

Task force 2: special health care needs of adults with congenital heart disease.

Transition into the adult health care system is crucial for patients with congenital heart disease (CHD), as well as for adolescents with many other chronic conditions. Indeed, “arranging efficient and caring transfer for adolescents from pediatric to adult care (is). . .one of the great challenges facing pediatrics—and indeed the health care services—in the coming century” (1). Centers that ca...

Task force 4: organization of delivery systems for adults with congenital heart disease.

At present, the physician workforce caring for ACHD patients in the U.S. consists of a few (,20) adult cardiologists with advanced training, as described, and an ongoing career focus in ACHD, as well as a much larger number of adult and pediatric cardiologists with little or no specific training in the care of ACHD patients, but with on-the-job experience. Development of a small but highly trai...

Task force 9: training in the care of adult patients with congenital heart disease.

Geriatric congenital heart disease: a new challenge in the care of adults with congenital heart disease?

This editorial refers to ‘Congenital heart disease beyond the age of 60: emergence of a new population with high resource utilization,highmorbidity, andhighmortality’,byO.Turatel et al., on page 725 and ‘Recommendations for organization of care for adults with congenital heart disease and for training in the subspecialty of ‘Grown-up Congenital Heart Disease’ in Europe: a position paper of the ...

Access to health care: health insurance considerations for young adults with special health care needs/disabilities.

Youth with special health care needs/disabilities want what all youth in America want: independence, health, friends, and jobs. Yet, between 19 and 23 years of age (depending on the state), youth with special health care needs/disabilities often find little availability of health insurance or health providers that were an essential part of why they survived and now are looking to participate in...